Monthly Archives: April 2019

T-15 Days – Multi Day Training

With 2 week to go before the “real thing”, the team got together to walk two days of 20+km so that we can see the mental and physical impact that this may have.

On the first day we went to Mt Cooke – a stunning mountain with gorgeous views of the Jarrahdale valleys.
It was difficult with a ~580m climb in the middle of the hike which is nearly 3x higher than anything that we will get to experience on the official hike (thankfully!). And as expected it was a very valuable exercise where we learned a lot about the types of breaks that we need, the different pace that we can achieve and the amount of food that we need to carry.

The second day saw us walking the Munday Brook Walk in Kalamunda. A scenic 9.9km loops which leaves a lot to be desired in terms of path markings and instructions like: “Turn left off the main track at an indistinct cross road. This turning point is not easy to see, it is in a natural clearing and there is a fallen tree to the right of the track.” This combined with trees that were eating the signage meant that our first loop was just over 12km but we eventually found our way back to the path and ended up doing 23km in total. We got some very useful stretching instructions from John and got further reinforcement on the pace that we can expect to keep on the walk.

A bit of a recap!

For those who haven’t been with us from the start here is a little bit of a summary of what we are doing.

Our teams aim is to hike just over 130km in 4.5 days to raise much needed funds and awareness for the Fibromyalgia Support Network and Dementia Australia.

The daily distance varies due to the limited availability of 2WD access to the track, so the split is as follows:

  • Day 1 – Wednesday – After a drive down from Perth, Cape Naturaliste Lighthouse to Injidup Beach. Distance: 23.45km
  • Day 2 – Thursday – Injidup Beach to Ellensbrook Homestead. Distance: 31.52km
  • Day 3 – Friday – Ellensbrook House to Redgate Beach. Distance: 22.86km
  • Day 4 – Saturday – Redgate Beach to Hamelin Bay. Distance: 28.52km
  • Day 5 – Sunday – Hamelin Bay to Cape Lewin Lighthouse. Distance: 24.72km

It is an incredibly aggressive itinerary, with the accumulated elevation gains of over 3.5km which is higher than the Everest Base Camp (although thankfully we won’t have to deal with the altitude).

So if you could help us help these great charities share our story or donate here:

No donation is too small and all donations over $2 are tax deductible.

We would also like to thank our gold sponsors for making this trip possible:
– ASG Group
– Kilifi Beach House – Live The Margaret River Life and
– Base WA

Donate here!
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The team!

With 2.5 weeks to go we thought it was about time to introduce the fantastic people who are undertaking this amazing hike for Fibromyalgia Support Network of Western Australia Inc. and Dementia Australia.

Lisa – I was a late addition to the team, joining initially for the fun of it! Knowing many friends and family with fibro, my first understanding of the cause was that sufferers were just tired and sore. But I am beginning to understand that fibro is much more than that, that it effects cognitive function, sleep, speech, skin/light/sound/smell sensitivity, digesting and mental health. I am looking forward to the challenge of the 135km – a small thing I can do to help bring awareness and much needed funds for such a debilitating yet mysterious illness.

Jacinda (aka J) – Life comes with many challenges – some you get to choose, others not so.Living with a chronic illness condition myself since childhood, I can imagine the complexities and challenges faced by the fibromyalgia and dementia sufferers, as well as their loved ones and the carers. It also makes me more appreciative of the challenges that my health allows me to choose, like going on the Cape to Cape trek with a bunch of determined folk! This together with the opportunity to drum up support for the invaluable work our charities are undertaking including raising awareness and making it easier for people to understand and talk about things like fibro, dementia and T1 diabetes, will be very rewarding.

Luke – I’ve had friends and loved ones who have either battled with or are living with dementia or fibromyalgia. The Cape to Cape walk is an opportunity for team of people directly affected by each these conditions to push themselves to the limit, inspire and challenge others to consider what they’re capable of, and, in doing this raise awareness and much needed funds for research & treatment. Every hero needs support and I’m doing this not only to support these important causes, but support these heroes as they take on the C2C challenge.

Dunja – Orchestrating this event whilst battling fatigue and fibro flares has been very difficult – but to raise funds for such worthy causes and awareness for the difficulties experienced by the warriors suffering and the people supporting them, is incredibly gratifying. And to actually complete this hike is a dream come true and proof to me that my fibro and arthritis cannot take away everything that I wish to achieve.

John (the JL in JL Fitness) – I wanted to set a challenge that people needed to practice for (help them get their daily/weekly steps up, get them outside in the fresh air) and something to aim for.With my wife having Fibro and some of my boot camp participants families suffering with dementia, I thought they would be great causes to raise money for.I’ve seen many kind and generous acts on the local Facebook pages, and thought it would be a great opportunity to get some prizes from local companies and give them to local people all whilst promoting and raising awareness for these great charities.

Jocelyn (aka Joss) – As a mother of a young child with Angelman Syndrome, I understand the importance and impact of raising awareness within the community of rare diseases and I have the privilege of participating in the 5 day Cape to Cape Challenge to help raise funds and awareness for Fibromyalgia Support Network WA and Dementia Australia.
If you would like to help this team raise funds for our charities please click here: .

Trackside and roadside fires… and the destruction that followed

Some horrible findings by the Wallcliffe Volunteer Fire Brigade

An illegal fire in the middle of the the Cape to Cape track that could have caused significant injury to unsuspecting hikers and a roadside fire that has scarred the landscape and got scarily close to the Lighthouse where we want to finish our hike in just under 4 weeks!!!

Why is it so difficult!

Please please please – prepare, take care, follow the rules and #dontbeafiremuppet!!!

Some gong show campfire performances out there in recent weeks🤬😱😠. The Autumn weather giving some people the…

Posted by Wallcliffe Volunteer Fire Brigade on Monday, 15 April 2019

How to Clean a Reservoir

One of the many useful references …

Because a few of our hikers are using drink flavours like Gatorade, the reservoirs that we are using go mouldy really quickly if they are not appropriately cleaned between uses. 
So here is a link with instructions on how you can clean the water reservoirs (e.g. Camelbacks) without spending a small fortune on the cleaning tablets.

Time and tide wait for no one

T-23 Days

Tide height – our chances of avoiding the high tide are not all that great

The beaches in the southwest are stunning – but if you are planning to traverse across 30km of sand whilst hiking a total of 135km – then of course you will be walking on the slightly more solid bit near the waters edge – EASY!

Except we’re going to be walking through high tide. High tide brings with it those little ledges so you either walk in the softer sand or you get thoroughly wet… and with hours of hiking to go after each stretch getting wet is not really an option.

At this stage we are just hoping that we reach the beaches early or late enough so that we can use the “easy section” but if not I think keeping in mind why we’re doing this will be key.

So if you would like to spur us on and donate to either Fibromyalgia Support Network of Western Australia Inc. or Dementia Australia please click here:

We would also like to thank our gold sponsors for making this trip possible:
– ASG Group
– Kilifi Beach House – Live The Margaret River Life and
– Base WA

Miracle Cures

This image goes hand in hand with numerous offers of “MIRACULOUS cures for all your ailments” that I have received since we set up this fundraiser. 

With an estimated 3-6% of the worlds populace suffering from Fibromyalgia, there is a huge market for diets, tablets, oils, creams, sprays etc etc that are promising a cure – and when you are in pain every day, when you have days when you are too tired to get up, when you have to keep giving up one thing after another – a cure, however remote, is something that you would pay a lot for…

This is where a group like the Fibromyalgia Support Network of Western Australia Inc. is incredibly useful. 
From health professionals, to well learned sufferers (either through experience or research), you can validate if something that you have heard or read about may have helped someone else or might be an expensive way to get yourself greasy and salty.

So if you would like to help them continue to support people like myself in avoiding getting duped – please make a donation by clicking here.

There is no Shame in Illness

A couple of years ago I wrote a Facebook post that said “most of the year I don’t talk about my fibro because I don’t want it to impact my life any more than it already does”. And then I realised that I was missing a chance to make a difference.
So when I have a bad day I tell people – and then I tell them not to feel sorry for me. When I am limping I say “it’s OK – this is my normal” and I tell people about the treatments that I am using – because we can change the perception that admitting to an invisible illness is a weakness and change the instinctive response from pity to understanding and support.

If we can do this it will mean that other fibro warriors don’t come out with quotes like this when asked “what would you like people to know about fibro”:
“I’d love to tell the world that we may not look sick, but for a lot of us we are just really good at faking that we are ok. Because we have to fake it. No one would put up with us if we told them constantly what we were going through.” TP, 29

“Every single day I want to say what hurts, how tired I am, which clothes are driving me mad; and ask “aaaaggghhh what is a comfortable position?!?!?”. However, no one needs to hear or be impacted by my negativity. SO… I smile & carry on.” MB 40

We are all different, but we all suffer and none of us aim to burden others with what we feel because we often want to at least have a shred of normality. And until we change the world and bring tolerance for all, being able to share our experiences with other people who understand can be a lifeline.

And the Fibromyalgia Support Network of Western Australia Inc.provides exactly that, so please help us help them by giving whatever you can:

No donation is too small and all donations over $2 are tax deductible.

Training in a Beautiful Place

We live in an incredibly gorgeous city where you can go from world class beaches, to city living to the outback within an hour.

During our training we have has the pleasure of experiencing some of the stunning landscapes that this city has to offer and here is a little bit of a taste!

Kitty’s Gorge, Serpentine National Park
South Perth viewed from Kings Park
The Towers at Elisabeth Quay
Morning sky over Stirling Civic Gardens
Matagarup Bridge
Kings Park
Kitty’s Gorge, Serpentine National Park
Swan River in East Perth
The Beeliar Spectacles
Dancing man!
That is not a snake!

Behavioural Changes in Patients with Dementia

One of the many symptoms of Dementia is a change to mood and behaviour. There are a number of explanations for this like a change in the brain chemistry or frustrations caused by forgetfulness or inability to do things they could do before etc. The change can also be incredibly drastic – a calm and gentle person could turn into an angry aggressive one, which can put incredible strain on the families, friends and carers of the people with Dementia.

But there are many techniques that can be used to deal with these changing behaviours to try and get as good an outcome as possible and this is where Dementia Australia comes in.

They have a wealth of resources available online that explain the various behavioural changes, what could be causing them and techniques you can try in the various scenarios which you can find here: Behaviour Changes

You can also give them a call on 1800 100 500 if you would like more advice or to just speak to someone who understands.

If you would like to make a donation to Dementia Australia so that they can continue to provide such useful services please click here. No donation is too small and all donations over $2 are tax deductible.

We would also like to thank our gold sponsors for making this trip possible:
– ASG Group
– Kilifi Beach House – Live The Margaret River Life and
– Base WA